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Henry Jayasena Column - 168

 

Story of a Cancer Patient - Part 10:

Treatment begins

"How thin he has become!"

"Good Heavens!"

"Isn't that Sudu Seeya!"

Such remarks came from some who had recognized me. None of them hindered our slow progress forward. Most of them would have been patients themselves. Others may have been accompanying their patients. Some wore dark colored scarves around their heads. A few were on wheel chairs. Some had come with their bandages on.

Each one had a look of desperation - of someone caught up in a cruel fate. And with that desperation there was courage, there was stoicism, there was hopelessness, there was dejection, sadness. Even utter resignation. This I though was according to the particular mindset of each individual.

Some smiled with me and I smiled back. Finally we entered the Room Number 6 after a long push. It was a very small room. Dr. Balawardhana sat behind a small table more or less in the middle of the room.

There were smaller tables - almost like desks - right round him. About six other doctors sat behind them seeing patients. There were mounds of files on these tables. On each file was printed in clear black letters 'Government Cancer Institute/Unit'.

"Come, Mr. Jayasena, please sit down." Dr. Balawardhana called me indicating the chair by his side. "You will get used to the procedure here, Mr. Jayasena. The noise and the crowds."

"I am used to crowds, doctor. And I am used to noise too." I replied softly with respect. Manel was standing near me. She gave the W.B.C. [White Blood Count] report to the doctor. He had ordered it. He took a few moments to go through the report.

"This is okay. We can start you on chemotherapy immediately." The doctor declared. He directed me to a couch behind his table, made me lie down and examined me. He looked at the cut, pressed my abdomen and did some anal inspection too.

"Okay." Said he after this routine, taking his gloves off and putting them into a bin.

"Okay, I don't see any problem."

He was once again seated at his table. I came around after adjusting my clothes and sat by him.

I was surprised to note the existence of an examining couch in such a small room. Since the couch was shielded by push-open plastic covers it would not be noticeable to a casual observer.

I was more than overwhelmed by the number of patients in the room being seen non-stop by the doctors present. Each doctor I thought would be seeing at least 100 patients per session, discussing their problems, diagnosing, prescribing their medicine, discussing their progress etc.

Each doctor took turns to examine patients taking two or three at a time. Later I found that there were a few covered cubicles outside the room too for this purpose.

Dr. Balawardhana reached out and took a small chit from a pile on his table, wrote out the due dose for me, signed it and gave it to my wife. "There is an issue counter right at the top on this row of rooms. Please go there, collect your medicine and take it to the chemo ward...And don't forget to take him along!" The doctor smiled at his own little joke and turned his attention to me.

"Don't be scared." He said. "Some take to chemo quite well. You might feel a little bad after the third, fourth doses. But I am sure you will face up to it. I know you are a courageous man, right?" He smiled.

There was, in this doctor, something that gave courage and strength to his patients. That was part of his strong personality.

"Thank you, sir." Was all I could say.

We were soon out of the room. You don't want to take the doctor's time more than necessary. He has many patients to see. You don't want to delay - especially when you have got there out of turn.

We located the issue counter easily, obtained our vials of chemo or whatever you call it and soon we were wending our way towards the all important Chemo Ward.

My progress was slow due to the battering my knees had experienced with the rheumatic spell. In any case I was thin and rather weak. Not strong in the legs at all. My wife was helping me by holding on to one of my arms "This ridiculous knee problem had to come just at this juncture!" I was grumbling. "People might think my cancer is in the leg..."

"Stop your nonsense and come along!" Says she rather sharply. She wants my mind to veer away from self pity. "People will look at you in any case. Because they recognize you!"

"Perhaps they don't, now that I am so thin!"

"So much the better!" Says she and laughs and I join in.

**********************

The Chemo Ward at the Maharagama Cancer Hospital is kept very clean. This ward stands rather apart from the rest of the buildings of the complex. The ward is air-conditioned.

As you walk down the rather steep aisle towards the ward, a very strong smell hits you in the nostrils. One learns it is the smell of chemo injections and perhaps other strong drugs administered to cancer patients.

As you enter the ward through its swing doors, you find a reception counter flanked by two long rooms on either side leaving an aisle in the middle. Almost every bed is occupied.

The chemo injections mixed with saline in plastic bottles hang from a stand near each bed. The injection nodule is fixed to a vein on the back of each patient's hand and the contents in the plastic bottles drip in, drop by drop.

A small dose takes around forty to fifty minutes to drip in. One learns later, that certain doses - perhaps stronger ones, take much longer. In certain cases the plastic bottle as well as the tube connected to it are covered by a green covering, like a jacket. Nurses who handle this duty wear nose masks and some wear gloves.

The smell of chemo could be extremely nauseating to some. Some patients start retching from the moment they come in to the ward. Surprisingly, some patients lie on their beds smiling away quite happily as if they are being given some kind of elixir. Most of the patients exchange pleasantries or indulge in light conversation.

I too found the smell of chemo quite nauseating and unpleasant. Soon I learnt to cover my nose with a handkerchief. Later, I learnt to carry a fresh lime which I kept sniffing every now and then. That certainly helped and I would recommend this simple trick to anyone to overcome the smell of chemo.

My tour-de-chemo started on the 7th of May, 1999 as scheduled. It was to go on for 52 weeks. Only God would have known how long I could have gone on and what was in store for me.

****************************

After about the third dose the chemo began to react. In my case rather badly. The mouth, lips and tongue were sore. I could hardly take any food. This of course was no great tragedy, since in any case with the very first dose of chemo, I lost my appetite almost completely.

You feel like running away at the very sight of food. I must add that this is not so for every person undergoing chemo. Some take it quite well without much nausea. In my case it could well have been that my body was weak after the operation and consequent loss of blood due to a diarrhea caused by an infection.

Anyway, I managed to last the consecutive five days of chemo and thankfully I was given a rest period of three weeks after that...

To be continued

[email protected]

****

Thought of the Week

My good friend Jayalath Manoratne has brought out a new production of the famous Soviet play by Eugeney Shwartsz 'The Dragon' - 'Makara' in Sinhala. I am very happy he has used my translation for the production. I produced this play way back in 1974 and later - around 1984 - it was brought to the stage once again by Dharmasiri Bandaranayake.

He called it 'Makarakshaya'. It won many awards at the State Drama Festival of that year and featured Ramani Bartholomeuz in the female lead of Eliza. Dharmasiri played the male lead of Lancelot in my production as well as in his own.

Makara is a very thought provoking satire. I am glad Mano - one of our most capable and senior most directors, has brought it on stage this time. I saw the premiere performance at Elphinston Theatre on the 21st of November. It was a scintillating production.

Mano himself played the most demanding role of The Mayor in his own inimitable style. He was hilarious, crafty, with a dash of pathos - pathos for the way people unflinchingly buckle under the rule of the Dragon.

Apart from Mano, The new Makara too employs a sterling cast in Jagath Chamila as Lancelot, Madini Malwattage and Paboda Sandeepani as Eliza, Samapath Tennakoon as the Dragon, and Sarath Chandrasiri as Henry - the rascally henchman of the Dragon.

Makara is a very timely piece of Theatre - when we have to seek and vanquish the Dragons in the hearts of all of us. Only then will we be able to live happily - ever so happily. I recommend Mano's Makara to all serious lovers of Theatre.

..................................

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